Sorry for the slow updates.

Visitors since 2000-8-19:

MS Crossroads discussion

in Finnish: MS-keskustelu suomeksi.

New links

• Diagnostic Criteria for Multiple Sclerosis (McDonald Criteria)
• MS Awareness Week is a campaign that will raise awareness about multiple sclerosis and the people that it impacts.
• ECTRIMS 2005
• Guide4Living

MS-stuff

• The World of Multiple Sclerosis by the International Federation of Multiple Sclerosis Societies.
• Understanding Multiple Sclerosis by Charles S. Yanofsky, M.D.
• MS resource center by MedScape
• The Consortium of Multiple Sclerosis Centers
• National MS Society
• ThisIsMS is an unbiased, unaffiliated site dedicated to eradicating Multiple Sclerosis.
• MS news by Doctor's guide.
• A Fundamentally New View of Multiple Sclerosis by R Ransohoff, MScare
• EPVA MS Quarterly Report.
• MSonly by Merle Spector and Rick Korejwo. See their Library.
• HealthTalk
• MSnews by Bostoncure.
• European MS Platform Objective I: Lobbying and Awareness Raising. Objective II: Facilitating Pan-European Projects (both funded and non-funded). Objective III: Providing information both from internal and external sources.
• MS by MedlinePlus
• RIMS, Rehabilitation in Multiple Sclerosis.
• UCSF Multiple Sclerosis Center
• Restoration of Function in Spinal Cord Injury and Multiple Sclerosis , the West Haven VA Rehabilitation Research and Development Center.
• MS Tutorial
• MS Medical Glossary
• My selection of old (1993-97) discussions from alt.support.mult-sclerosis: files.
• Useful ms-related files: Infosci by Chris Boyes. For example, frequently asked questions for alt.support.mult-sclerosis group and MSLIST-L: FAQ from 1996.
• Multiple Sclerosis Continuing Mysteries and Current Management (PDF).
• MS texts by professionals from CNSonline.
• AAN, AMERICAN ACADEMY OF NEUROLOGY.
• Die DMSG - die Deutsche Multiple Sklerose Gesellschaft e.V.
• SUOMEN MS-LIITTO the Finnish MS Society.
• Multiple Sclerosis Society of Canada
  • National office
  • Kingston MS Chapter
  • Calgary Multiple Sclerosis Society
• Associazione Italiana Sclerosi Multipla
• Multiple Sclerosis Association (MSA) of King County .
• The Multiple Sclerosis Foundation
• UK MS Society
• The MS Research Trust, an independent UK charity for people diagnosed as having MS, their families, carers and health professionals.
• MS first, The Multiple Sclerosis Research Unit in Bristol is furthering information, research, support and training by putting MS first.
• The European Charcot Foundation

The FDA approved MS drug companies

• The Betaseron
• MS Gateway by Schering.
• MS-Network by Serono. MSLifeLines by Serono.
• Novantrone by Immunex.
• MSknowledge by Immunex.
• Avonex
• Understanding MS by Biogen.
• MSActiveSource.com by Biogen and Avonex.
• Copaxone
• MSWatch by Teva Neuroscience, Inc.

• My selection: New on crossroads
• AUTO-IMMUNE news collected by Irwin Mortman. (Here you can find the latest ms news and abstracts.)
• Cowboy's Multiple Sclerosis news
• MS in the news by Yahoo.

1. All About Multiple Sclerosis (was: Laetoli Man's Multiple Sclerosis Pages)
2. ThJuland's MSers' Glen A MSer's resource website containing: a message board, MS glossary, files on Multiple Sclerosis, support group links, abstracts, links.
3. MS pages by James S. Huggins.
4. MS pages by Ole Andreas Hvatum from Norway.
5. NML multiple sclerosis search
6. International MS Support Foundation by Jean Sumption.
7. Laurel Highlands Multiple Sclerosis Support Group
8. CLAMS
9. John and Claude, Claude the Cartoon Pooch with Multiple Sclerosis.
10. R. Miller, MS sources
11. Yahoo - Health:Diseases and Conditions:Multiple Sclerosis
12. Multiple sclerosis by Google
13. HON
14. MIC-KIBIC at the Karolinska Institute

1. MS-newsgroup alt.support.mult-sclerosis. Via web alt.support.mult-sclerosis
2. Shared Solutions™ from Teva Neuroscience. Enroll through Copaxone.com for educational materials, nurse counseling and more.
3. Multiple Sclerosis webforum A forum to discuss and comment on Multiple Sclerosis.
4. Multiple Sclerosis Forums - by MedSupport
5. Welcome to MS One to One. It is a monthly one-sheet periodical.
6. MS MOMS.  
7. Multiple Sclerosis PenPals UK a.k.a. Jooly's Joint. Visit Jooly's Joint: Julie Howell's worldwide webpal service for people living with Multiple Sclerosis.
8. MS Crossroads -parlamentti suomenkielinen keskustelu/ discussion board in Finnish.
9. Schering Finland, another discussion board in Finnish/ suomenkielinen ms-keskustelu.

• A video of me using a lift equipped taxi. I use those f.ex. on my way to work.
• Independent living
• A picture of me standing. Standing is good exercise for bones, breathing, bowel, etc.
• Read 300 Tips for Making Life With Multiple Sclerosis Easier, from Copaxone.com.
• Motomed, exercise machine, movement therapy.
• A homepage of my friend Jorma Seppala with pictures of using a low floor bus with wheelchair.
• iBot a Stair climbing wheel chair

• PRC, professional resource center by NMSS.
• MS genetics by OMIM
• PubMed, MS publications from the last month
• British Medical Journal articles on MS
• The World of MS Pro
• Consortium of Multiple Sclerosis Centers
• CME: secondary progressive MS (SPMS)
• Int'l journal of MScare
• MS Quarterly Report by EPVA.
• Diagnostic criteria for multiple sclerosis. Poser CM, Brinar VV. Clin Neurol Neurosurg 2001 Apr;103(1):1-11.

Others

1. EDSS scale has been used to measure disability.
2. The Multiple Sclerosis Functional Composite (MSFC) vs. the Expanded Disability Status Scale (EDSS)
3. Irwin Mortman hosts a ms and other autoimmune diseases research discussion list. Web site for instructions and archives. (Here you can find the latest ms news and abstracts.)
4. clinicaltrials.gov
5. MS news by Doctor's guide.
6. The Department of Neurology at the University of Chicago Medical Center's web site devoted to MS and other neurological disease.
7. Veritas Medicine, a service that bridges the information gap between patients and innovative medical therapies.
8. Multiple Sclerosis, the journal.
9. NEJM
10. Research by MS Pathfinder
11. Current research by NMSS.
12. Research on ms by Dr. Angelo R. Massaro et al.
13. THE MYELIN PROJECT Home Page, by the Odone family et al. Progress report 2001-8
14. The Canadian Myelin Research Initiative
15. Multiple Sclerosis--Research Highlights by NINDS.
16. The Antibody Resource Page
17. Medical Sciences Bulletin: Autoimmunity and neurologic disorders. New immunology.
18. Archives of neurology
19. Neurology books Commentaries on articles appearing in the current medical literature important to clinical neurology. Full text. HTML and PDF formats.
20. MRI of a ms-brain

• PubMed,
• MS publications from the last month
• Clinical trials
• BioMedNet

• Symptom Management in Multiple Sclerosis,

MS drugs

• MS Guide to treatment and management
• ABC Comparison
• What is new in the treatment of multiple sclerosis? 2000
• Multiple sclerosis. Current review of failed and discontinued clinical trials of drug treatment
• There are three beta-interferon products: Betaseron(US) a.k.a. Betaferon(Europe), Avonex and Rebif.
  • The Betaseron by Berlex.
  • Avonex by Biogen. Avonex is beta interferon-1a.
  • MS Gateway by Schering. Betaferon is beta interferon-1b.
  • MS-Net by Ares-Serono. Rebif is beta interferon-1a.
  • The Betaseron Foundation, an independent, non-profit foundation dedicated to providing the drug Betaseron (Interferon beta-1b) to financially eligible uninsured and underinsured multiple sclerosis (MS) patients. (US)
  • Neutralizing Antibodies Against Betaseron.
  • Betaseron study in Neurology
  • Multiple Sclerosis: Betaseron and Beyond
  • Medical publications about betainterferon: abstracts.
  • Production of betaseron
• I.V. Methylprednisolone
• General info about prednison.
• Copolymer I a.k.a Copaxone a.k.a glatiramer acetate
  • Glatiramer acetate studies from medline.
  • Copaxone
• iv immunoglobulin
• Secondary progressive ms.
  • Clinical trials in SPMS, MScare 2000
  • CME: secondary progressive MS (SPMS)
  • New Study with Biogen's AVONEX(R) (Interferon Beta-1a) in Secondary Progressive Multiple Sclerosis Achieves Primary Endpoint
  • Interferon beta-1b and secondary progressive multiple sclerosis: licence extension. Useful, but further assessment required.
  • mitoxantrone, medline search, Novantrone fact sheet
  • methotrexate, 7.5 mg/week Methotrexate for RA .

• Why Bogus Therapies Often Seem to Work by Barry L. Beyerstein, Ph.D.
• QuackWatch Home Page (new)
• Diet and MS, Medline abstracts collected by Paivikki Parpola. (new)
• Multiple sclerosis: sunlight, diet, immunology and aetiology

• The Neurology and Neurosciences page
• Healthtouch® - Online for better health, Healthtouch - Health Information: Epilepsy, Cerebral Palsy & Multiple Sclerosis
• HealthFinder
• pslgroup
• Neurosciences on the Internet
• OncoLink Chemotherapy Page
• by HealthGate
• Life Sites of the Week
• Food and Drug Administration Home Page
• The Medical Reporter
• CHORUS
• OptionCare of Tulsa
• Health web
• PSYCHOLOGY WEB POINTER, Psychology & Support Groups Newsgoup Pointer
• THE MULTIMEDIA MEDICAL REFERENCE LIBRARY
• sci.med-newsgroup
• OMIM - Online Mendelian Inheritance in Man
• InfoSeek and the MDX Database
• Fimnet kotisivu FiMnet.
• Emotional Support Resources
• PSL group
• PPS OnLine
• med.ed
• medweb
• mednews
• medhelp

• Future computer user interface?: A device that reads brain waves through the skull has enabled paralyzed people to write sentences on a computer screen.
• Speech recognition
• WAI, web for disabled. Writing Accessible HTML Documents
• IBM special needs solutions
• Apple disability solutions with other disability links.
• access.berksys.com for information about accessibility products for visually impaired computer users and pointers to other sites with disability info.
• Software for disabled ada.html
• EASI (Equal Access to Software and Information) This organization has a Web server with all kinds of stuff. Of particular interest is a listing of vendors with product descriptions, POCs (points of contact), and pricing. See their disclaimer too.
• ABLEDATA This is a federally funded (for how long?) effort to provide a searchable database of products designed/intended to assist all sorts of disabilities. You can get to it via ftp (ftp://ftp.fedworld.gov) or via th Web (http://www.fedworld.gov)