Name: Aapo Halko
Email Address: email@example.com
Web Page: http://mscrossroads.org
Diagnosis Date: 08/20/79
Grew Up: Helsinki
Type of MS: secondary progressive
First Symptoms: Numbness in hands and in legs. These symptoms disappeared in three months.
Possible Causes: Not causal, but 1990 was stressful time because of my work and birth of my first daughter.
Current Symptoms: From 1990 my legs and hands have gotten spastic. Fatigue. According to my neuro I have only one lesion which is in the spinal chord. From 1996 my voice and breathing are weak. Update 7/98: My symptoms are essentially the same. The progression is slower. (Mitoxantrone therapy started 11/97). 2/99 MRI revealed typical lesions in the brain but my symptoms come from the spinal chord which was not 'mried'. 11/2003 i started rebif
How Life is Affected: I use electric wheel chair to move around. I can take a few steps while holding. I need a personal assistant constantly. I still work part time. My walking distances
How Do You Deal: I don't have emotional problems. I don't have bladder problems, but bowel is slow. I eat high fiber and take lactulose every day. I get physio therapy twice in a week and three-week rehabilition twice in a year.
Possible Cures: In 1994-2001 I have got 40 3-day i.v. methylprednisolon pulses. 7/95-3/96 I used beta-interferon, 6 MIU once a week. During that time I had less fatigue but my ms progressed. I tried gluten free diet in 1993, but it did not help. In 93 I got tetanus-diphteria vaccination. A week after that my walking distance dropped from 500m to 200m. I have been on azathioprine, but have not noticed a difference. Next we will try mitoxantrone treatment. 7/98. After 4 mitoxantrone treatments I am almost stable. 8/2000 After 9 mitoxantrone treatments, I have been active, working part time, my symptoms are only a little worse. 3/2001 Every flu makes me little worse. 10th treatment, two more to go. 10/2003 i got the last mitoxantrone infusion, two years after the previous. i have had several ivmps.
MissionOne of the goals of this site is to bring the latest knowledge of multiple sclerosis - for which there is no simple answer.
Around 1992 I started to follow the newsgroup alt.support.mult-sclerosis which was and is a group of people asking, answering, supporting, searching for the information.
When www came in 1993-94 I soon realized its power. First I collected www-links for myself, but then I put the link list which I called I wanted to use the Internet to shorten the gap between researchers, doctors and patients.
MS Crossroads has visitors f.ex. from US Commercial, US Educational, Finland, Canada, United Kingdom, United States, Non-Profit Organization, Australia, Spain, Sweden, US Military, US Government, Netherlands, Germany, Belgium, Saudi Arabia, Mexico, Italy, Norway, New Zealand (Aotearoa), Japan, France, Greece, Old-Style Arpanet, Austria, Switzerland, Czech Republic, South Africa, Denmark, Ireland, Macedonia, Argentina, Israel, Portugal, Lithuania, Uruguay, Bosnia and Herzegovina, Cyprus, Pakistan, Singapore, Chile, Croatia (Hrvatska), Colombia, Botswana, Georgia, Egypt, Iceland, Peru, Romania, Malaysia, Slovenia, Brazil, Jamaica, Estonia, Russian Federation, Yugoslavia, Iran, Poland, India, Turkey, United Arab Emirates, Malta, Luxembourg, Andorra, Thailand, Taiwan, Cocos (Keeling) Islands, Jordan, Samoa, Bermuda, Hong Kong, Dominican Republic Brunei Darussalam, Oman, Indonesia, Hungary, Philippines, Lebanon, Niue, South Africa