links

Visitors since 19.8.2000:

• AUTO-IMMUNE news collected by Irwin Mortman. (Here you can find the latest ms news and abstracts.)
• FDA Approves Novantrone to Treat Progression in MS

• MSknowledge by Immunex.
• Understanding MS.
• EPVA MS Quarterly Report.
• The Consortium of Multiple Sclerosis Centers
• MSonly by Merle Spector and Rick Korejwo. See their Library and MSonly glossary. the MSonly message board.
• The International Federation of Multiple Sclerosis Societies The World of Multiple Sclerosis.
• National MS Society
• MS Tutorial
• MS Medical Glossary
• My selection of old discussions from alt.support.mult-sclerosis: files. (Hint: Download the textfiles to your computer. Then use your e-mail or newsreader program to read them.)
• Colorado HealthNet Multiple Sclerosis Center
• Useful ms-related files: Infosci by Chris Boyes. For example, frequently asked questions for alt.support.mult-sclerosis group and MSLIST-L: FAQ. You can get the files by email also: E-mail infoserv@infosci.org, No Subject, one line in the message, info ms-docs
• Multiple Sclerosis Continuing Mysteries and Current Management (PDF). New
• Understanding Multiple Sclerosis by Charles S. Yanofsky, M.D.
• Multiple Sclerosis, The Immune System's Terrible Mistake, BY PETER RISKIND, M.D., PH.D.
• MS texts by professionals.
• AAN, AMERICAN ACADEMY OF NEUROLOGY.
• Die DMSG - die Deutsche Multiple Sklerose Gesellschaft e.V.
• SUOMEN MS-LIITTO the Finnish MS Society.
• Schering Finland discussion board in Finnish/ suomenkielinen ms-keskustelu.
• Multiple Sclerosis Society of Canada
  • National office
  • Kingston MS Chapter
  • Hamilton District Chapter
  • Calgary Multiple Sclerosis Society
  • Ottawa-Carleton Chapter
• Eastern North Carolina Chapter of the National MS Society
• Indiana
• Quest for a Cure The MS Research Center in Saskatoon's City Hospital
• Multiple Sclerosis Association (MSA) of King County .
• The Multiple Sclerosis Foundation
• The Multiple Sclerosis Foundation's MS Clinic
• MS Organisations in the UK
• UK MS Society

1. MS pages by James S. Huggins. (new, good)
2. NML multiple sclerosis search
3. International MS Support Foundation by Jean Sumption.
4. Laurel Highlands Multiple Sclerosis Support Group
5. CLAMS
6. John and Claude
7. R. Miller, MS sources
8. CSHSD (Centre for the Study of Health, Sickness and Disablement) at Brunel.
9. Yahoo - Health:Diseases and Conditions:Multiple Sclerosis
10. Multiple sclerosis by InfoSeek
11. LookSmart: Multiple Sclerosis links
12. MIC-KIBIC at the Karolinska Institute
13. MS watch

1. MS-newsgroup alt.support.mult-sclerosis. You can join MSLIST-L also by email. Send LISTSERV@techunix.technion.ac.il (new address!) a message with no subject, one line in the message, subscribe MSLIST-L your name
2. Multiple Sclerosis webforum A forum to discuss and comment on Multiple Sclerosis.
3. Multiple Sclerosis Forums - by MedSupport
4. MS message index
5. Welcome to MS One to One. It is a monthly one-sheet periodical.
6. Multiple Sclerosis PenPals UK a.k.a. Jooly's Joint. Visit Jooly's Joint: Julie Howell's worldwide webpal service for people living with Multiple Sclerosis.
7. #multiple_sclerosis channel's Official Home Page

• A picture of me standing. Standing is good exercise for bones, breathing, bowel, etc.
• Motomed, exercise machine, movement therapy.
• A homepage of my friend Jorma Seppala with pictures of using a low floor bus with wheelchair.

• MS genetics by OMIM
• PubMed, MS publications from the last month
• NARCOMS by Consortium of Multiple Sclerosis Centers Committees
• CME: secondary progressive MS (SPMS)
• Int'l journal of MScare

Others

1. Irwin Mortman hosts a ms and other autoimmune diseases research discussion list. Web site for instructions and archives. (Here you can find the latest ms news and abstracts.)
2. MS news by Doctor's guide.
3. The Department of Neurology at the University of Chicago Medical Center's web site devoted to MS and other neurological disease.
4. Veritas Medicine, a service that bridges the information gap between patients and innovative medical therapies.
5. Multiple Sclerosis, the journal.
6. NEJM
7. Research by MS Pathfinder
8. The MULTIPLE SCLEROSIS Clinical Research Group
9. MULTIPLE SCLEROSIS RESEARCH Menu by Baylor College of Medicine. On the T-Cell vaccine.
10. Current research by NMSS.
11. November 96 newsletter by MS Society of Canada.
12. Herpes viruses and ms from IMSSF. Suspicion Mounts on Herpes Virus in MS from NMSS.
13. THE MYELIN PROJECT Home Page, Latest Report - May '99.
14. Multiple Sclerosis--Research Highlights by NINDS.
15. The Antibody Resource Page
16. Medical Sciences Bulletin: Autoimmunity and neurologic disorders. New immunology. Focus On... Rheumatoid Arthritis. Oral Collagen for Rheumatoid Arthritis.
17. Archives of neurology
18. Neurology books Commentaries on articles appearing in the current medical literature important to clinical neurology. Full text. HTML and PDF formats.
19. FPhandbook
20. Multiple Sclerosis books
21. MRI of a ms-brain
22. Neuroradiology Imaging Archives
23. mri teach

• DIVISION OF NEUROLOGY at UBC.
• B. Arnason et al. at University of Chicago.
• Shepherd Multiple Sclerosis Center
• University of Pennsylvania department of neurology
• Massachusetts General Hospital Multiple Sclerosis Unit
  MS researchers
  • Lehrich James, Riskind Peter N, Stein Marion, Margolin David H, Kostyk Sandra, Charissa Dyer, Lees Marjorie
  • MGH Neurology Resources
• University of Turku Ari Hinkkanen, Aimo Salmi
• J. Herbert, Joseph Herbert, M.D.
• Ebers
• Howard L. Weiner
• David Hafler
• KUMC Multiple Sclerosis Clinic
• Brian R. Apatoff, M.D., Ph.D.
• UW Multiple Sclerosis Clinical Center
• DONALD H. SILBERBERG, M.D.
• Clinical Drug Trials
• CHRISTINE ROHOWSKY-KOCHAN, Ph.D.
• JOHN W. PRINEAS, M.D.

Companies

• The Betaseron
• Avonex
• MS Gateway
• MS-Net
• Copaxone
• Novantrone

• PubMed, MS publications from the last month
• BioMedNet
• Avicenna. It is free but you must register.
• HealthGate
• MedScape
• HealthyNet

• Symptom Management: Focus On Fatigue In Multiple Sclerosis
• Symptom Management in Multiple Sclerosis, Symptom Management in 1997, by Schapiro
• Tremors and spasticity.
• tizanidine for spasticity.
• amantadine for fatigue.
• Catherine Britell's home page.
• 4-AP (Fampridine) by MD's on AOL. Schwid SR, 1997

MS drugs

• What is new in the treatment of multiple sclerosis? 2000
• Multiple sclerosis. Current review of failed and discontinued clinical trials of drug treatment
• There are three beta-interferon products: Betaseron(US) a.k.a. Betaferon(Europe), Avonex and Rebif.
  • The Betaseron by Berlex.
  • Avonex by Biogen. Avonex is beta interferon-1a.
  • MS Gateway by Schering. Betaferon is beta interferon-1b.
  • MS-Net by Ares-Serono. Rebif is beta interferon-1a.
  • The Betaseron Foundation, an independent, non-profit foundation dedicated to providing the drug Betaseron (Interferon beta-1b) to financially eligible uninsured and underinsured multiple sclerosis (MS) patients. (US)
  • Neutralizing Antibodies Against Betaseron.
  • Betaseron study in Neurology
  • Multiple Sclerosis: Betaseron and Beyond
  • Medical publications about betainterferon: abstracts.
  • Production of betaseron
• I.V. Methylprednisolone
• General info about prednison.
• Copolymer I a.k.a Copaxone a.k.a glatiramer acetate
  • Johnson KP, 1995
  • Copaxone
• Secondary progressive ms.
  • New Study with Biogen's AVONEX(R) (Interferon Beta-1a) in Secondary Progressive Multiple Sclerosis Achieves Primary Endpoint
  • Interferon beta-1b and secondary progressive multiple sclerosis: licence extension. Useful, but further assessment required.
  • Mitoxantrone, Edan G, 1997 1997, Novantrone fact sheet
  • methotrexate, 7.5 mg/week Methotrexate for RA
  • cladribine, PNAS: The treatment of chronic progressive multiple sclerosis with cladribine.
  • autoimmunity and neurolgical disorders

  Speculation

  • Why Bogus Therapies Often Seem to Work by Barry L. Beyerstein, Ph.D.
  • QuackWatch Home Page (new)
  • Diet and MS, Medline abstracts collected by Paivikki Parpola. (new)
  • Multiple sclerosis: sunlight, diet, immunology and aetiology

  Medical stuff

  • The Neurology and Neurosciences page
  • Healthtouch® - Online for better health, Healthtouch - Health Information: Epilepsy, Cerebral Palsy & Multiple Sclerosis
  • HealthFinder
  • pslgroup
  • Neurosciences on the Internet
  • OncoLink Chemotherapy Page
  • by HealthGate
  • Life Sites of the Week
  • Food and Drug Administration Home Page
  • The Medical Reporter
  • CHORUS
  • OptionCare of Tulsa
  • Health web
  • PSYCHOLOGY WEB POINTER, Psychology & Support Groups Newsgoup Pointer
  • THE MULTIMEDIA MEDICAL REFERENCE LIBRARY
  • sci.med-newsgroup
  • OMIM - Online Mendelian Inheritance in Man
  • InfoSeek and the MDX Database
  • Fimnet kotisivu FiMnet.
  • Emotional Support Resources
  • PSL group
  • PPS OnLine
  • med.ed
  • medweb
  • mednews
  • medhelp

  Software for disabled

  • Future computer user interface?: A device that reads brain waves through the skull has enabled paralyzed people to write sentences on a computer screen.
  • Speech recognition
  • WAI, web for disabled. Writing Accessible HTML Documents
  • IBM special needs solutions
  • Apple disability solutions with other disability links.
  • access.berksys.com for information about accessibility products for visually impaired computer users and pointers to other sites with disability info.
  • Software for disabled ada.html
  • EASI (Equal Access to Software and Information) This organization has a Web server with all kinds of stuff. Of particular interest is a listing of vendors with product descriptions, POCs (points of contact), and pricing. See their disclaimer too.
  • ABLEDATA This is a federally funded (for how long?) effort to provide a searchable database of products designed/intended to assist all sorts of disabilities. You can get to it via ftp (ftp://ftp.fedworld.gov) or via th Web (http://www.fedworld.gov)

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